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Prognosis

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  • This is extremely variable.
  • it is estimated that 1 in 4 adults diagnosed with ME/CFS are so severely affected that they are house-bound or bed-bound, with little functional capacity, needing 24-hour care (1)
    • this can last for months or years. In rare cases, the outcome has been fatal

Children can be severely affected by CFS, but in general the outlook is better in children and young people than in adults (2)

References:

  1. GOV.UK (August 2023). My full reality: the interim delivery plan on ME/CFS.
  2. Carruthers BM et al. Myalgic encephalomyelitis: International Consensus Criteria. J Intern Med. 2011 Oct;270(4):327-38

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