if a child with sickle cell disorder is identified it is important that you know how to access, or be familiar with the local protocols. This can vary from area to area. Front line professionals such as health visitors and/or GP's may need to guide the family to specialist services Parents should be provided with access to a designated well informed professional, for example a haemoglobinopathy counsellor, to initiate and facilitate prompt advice and referral for further diagnostic tests and care for the child
further information for the practitioner is available through the PEGASUS website
front line professional also needs to be aware that the neonatal screening will pick up healthy sickle cell carriers. Again they need to have agreed protocols of how to deal with this situation
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